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Real members of MyFoodAllergyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi Everyone, Has Anyone Been Prescribed An Epipen And Never Had To Use It? And What's Bad Enough To Make You Need 1?

Hi Everyone, Has Anyone Been Prescribed An Epipen And Never Had To Use It? And What's Bad Enough To Make You Need 1?

If you get an epipen prescription is it definite you are going to use it and when do you use it or is it possible you can have it and never get to use it? What kind of reactions would make u get the script and should you look out for before you use it?

A MyFoodAllergyTeam Member said:

Very good question... Don't stress... You will know when to use it... the visual cues are very noticeable... one sees the swelling... one hears the person or me oneself talk cause my tongue was swelling.. Yes I have had the time and the appropriate reaction to get to epipen and had courage to inject myself only a few occasions... One's emergency response is prepared to use it... I practiced with injecting an orange with regular syringe to get confidence and get experience to expose myself with the ability to do so if needed... The inexperience was a bigger worry at the beginning... but back in 1980s it was epinephrine syringe injection the actual incident when I needed to use epipen. The epipen is so much easier... I still recommend if possible the assistance of education of syringe use it is a good confidence builder for anyone who Needs to carry epipen...

posted almost 6 years ago
A MyFoodAllergyTeam Member said:

My experiences have been that my throat and face would swell and breathing would quickly become difficult.

The doctor should explain in detail what to do and when to do it.

posted about 6 years ago
A MyFoodAllergyTeam Member said:

I have had similar reactions if in ingredient list had may contain... coconut oil... palm oil... or made in a facility that has nut/peanut product.... Be diligent you are doing the right thing read everything... I stopped trying samples anywhere even refused relatives cooking if they cannot show me product boxes or wrappers and envelop with ingredient list. Safety first... prevention is the best approach...

posted almost 6 years ago
A MyFoodAllergyTeam Member said:

I made my own epipen carry case with velcro... If anyone would like one I can make them.. Let me know I can explain how to make...

posted almost 6 years ago
A MyFoodAllergyTeam Member said:

Yes ALWAYS carry epipen.... Don't leave home without it... If possible keep one at home and ONE one the go... Finding a wallet of fanny pack to hold it is a challenge but keep looking you will find a Easy to carry pouch to clip or slide in pocket... where and find clothing with pockets OR fasten velcro in inner coat ...coats or vests.. and on epipen little dark colored pouch... Very easy to transport... remove... and use if needed

posted almost 6 years ago
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