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What Bits Of "advice" Do You Wish People Would Stop Telling You?

MyFoodAllergyTeam asked a question 💭
San Francisco, CA
October 8, 2016
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Answer Summary

Members shared profound frustration over dismissive comments they receive about food allergies, with the most common and hated phrases being... Read more

Members shared profound frustration over dismissive comments they receive about food allergies, with the most common and hated phrases being "he'll grow out of it," "just a little bit won't hurt," and "it's all in your head," along with unsolicited suggestions for miracle cures, alternative treatments, or deliberately testing someone's allergy to prove it isn't real. Several members described the emotional toll of constantly having to explain cross-contamination, justify carrying an EpiPen, defend why they can't eat certain foods, and educate even doctors who minimize their symptoms or question the severity of reactions that have previously sent them to the hospital. A recurring theme was the exhaustion of navigating a world where people treat allergies as lifestyle choices, exaggerations, or problems that can be fixed with willpower, met with a collective call for basic respect, belief, and the understanding that food allergies are serious, life-threatening conditions requiring vigilance and support rather than judgment.

A MyFoodAllergyTeam Member

I think I have finally come with the perfect retort to people who stupidly think that "just a little won't hurt you". etc. Here it is:

Thank you for understanding my food intolerance. I appreciate that you understand how much pain I endure with even the smallest amount of (insert whatever it is that you can't have). I know you want me to be healthy and your support means the world to me.

Ignore whatever stupid comment they made and just smile and repeat the above. It will eventually get through that you EXPECT and NEED their support and NO you cannot have even a tiny bit of whatever it is that they are pushing at you. You will appear gracious and understanding instead of (whiny and difficult - which we, who do not conform, are perceived, instead of them being seen as inconsiderate and unfeeling...LOL)

October 10, 2016
A MyFoodAllergyTeam Member

I can relate to all of your comments. I have a really hard time with people thinking I am nuts, or telling me that I cause my reactions by being anxious. I really wish people would at least try to understand. But at least I have you guys. It is great that we have this support.

October 9, 2016
A MyFoodAllergyTeam Member

Celiac is more common than people think. The saddest part is that 90% of celiacs in this country haven't been diagnosed. Sadly, I don't think most realize how harmful gluten can be for celiacs.It burns me up to see pizza places advertise for gluten-free pizza but then use the same oven for regular pizza as their gf version. No, then it's NOT gluten-free after all. Ugh.

October 20, 2016
A MyFoodAllergyTeam Member

it's not just that they advertise gluten free pizza they also don't mention out here that they use udis and it has egg whites, which i am allergic too! so i am learning to buy gluten free pizza crust mix and make my own! i am sorry to hear about how negative people can be about the discussion surrounding our allergies, they may not like to hear all the details and we don't have to share them, but when it comes to food and it's safety we have a right to speak up and question what's in something as it is life threatening and people should understand that! i guess not being in our boat(situation) they are ignorant to the fact that is is now our life and we don't dwell on it 24-7 we need to be alert when we are eating food we are not preparing with our own hands.

October 20, 2016
A MyFoodAllergyTeam Member

Just stay away from it. I just wish they knew the amount of products that contain citric acid, and how many food items can't be eaten.

October 18, 2016

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