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Tests All Come Back Normal

A MyFoodAllergyTeam Member asked a question 💭
Livingston, UK

My daughter thought she might be allergic to gluten she’s had blood test and stool test done but all come back normal, she went gluten free for a couple of months and felt fine but had to start eating gluten again for test she get bad pains in her stomach and can be sick, what else can I do to find out what making her feel this way

January 2, 2018
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Answer Summary

Members overwhelmingly encouraged a parent whose daughter felt better off gluten but tested negative to trust her body's response and continue... Read more

Members overwhelmingly encouraged a parent whose daughter felt better off gluten but tested negative to trust her body's response and continue avoiding gluten, noting that standard allergy tests often miss gluten intolerance and even celiac disease. Several members shared that blood tests for celiac are notoriously unreliable, recommended seeing a gastroenterologist for proper diagnosis, and suggested keeping a food diary to identify other potential triggers like dairy, fructans, or combinations of foods. A recurring theme was empowerment through elimination, with many members emphasizing that if avoiding gluten makes her feel well, that's reason enough to stick with it regardless of test results.

A MyFoodAllergyTeam Member

If she was fine when not eating gluten and having pain when she does, it would point to her having a gluten intolerance. Simple enough to just avoid gluten for a few months and see if that helps. As my doctor says, most of the tests used do not test deep enough and miss this.

January 6, 2018
A MyFoodAllergyTeam Member

I am sorry you didnt get a reply before. I am celiac. First off the blood test results are not great, I have heard so many people with Celiacs who the initial blood test was negative. It starts off with what Blood test did they do? Did they test for the Celiac Gene?
I could go on and on.... basicly, my advice is this.
1. If she feels good gluten free, stay gluten free.
2. Get her into a gastroenterologist they will be able to diagnose her correctly.
Good luck!

February 1, 2018
A MyFoodAllergyTeam Member

My daughter has always tested negative her whole life on every type of allergy test for milk and soy but she is very allergic. I talked to her allergist and he said it is rare but not unheard of to test negative and have an allergy. If your daughter was better off it then do what feels right! She probably has an allergy.

February 28, 2018
A MyFoodAllergyTeam Member

Yeah. Avoid gluten. It is in a lot of stuff though. So be prepared to check the labels. A lot!

February 26, 2018
A MyFoodAllergyTeam Member

Testing is a great tool and is very helpful. I have found that keeping a diary of all food and drink is extremely helpful as we are all different. It might just be the combination of certain foods that trigger your attacks. Yes it takes a bit of time but I found it well worth it and remember some people grow into AND out of allergies/intolerances.

March 2, 2024

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