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A MyFoodAllergyTeam Member asked a question 💭
Ontario, Canada
June 28, 2018
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Answer Summary

Members discussed the challenges of identifying food intolerances and allergies, with one long-time sufferer expressing deep frustration after... Read more

Members discussed the challenges of identifying food intolerances and allergies, with one long-time sufferer expressing deep frustration after 35 years of negative test results despite having serious anaphylactic reactions. Several members shared their own experiences, including IgG testing through gastroenterologists, exclusion diets like AIP and FODMAP, fermented foods for gut health, and one member describing a VEGA test that identified multiple problem foods. A recurring theme was the emotional toll of chasing answers without a clear diagnosis, with the community offering encouragement to keep advocating and exploring options beyond standard allergy testing.

A MyFoodAllergyTeam Member

I can’t find anything. If it’s IGg tests they are not validated by anything scientific.
My allergist says the alcat and Elisa tests are not science based and offer false hope.
The drops, patch etc are not North American standards.
What do I do when my blood test and skin prick tests show everything is negative?
This may be science based and the “gold standard” for food allergy testing but I know better from my many anaphylactic and intolerance reactions.
If I have no food allergies why do they insist that I have my epi pens with me at all times?

June 28, 2018
A MyFoodAllergyTeam Member

Hi Nicole. Thanks for the advice. I haven't given up, just frustrated. Doing OK but would like to be better by identifying the allergy then totally eliminate. Antihistamines, inhalers etc treat the symptoms but do not solve the problem. Different opinions require referrals and waiting times of a year per professional. The dietician seems to be on the right track and I see her regularly.

July 27, 2018
A MyFoodAllergyTeam Member

Hey George I think you should get a second opinion there something that's making you sick don't give up hope

July 26, 2018
A MyFoodAllergyTeam Member

Hi again george, i didnt realise you'd had this problem for 35yrs, so my earlier comment probably doesn't apply.
IGg reactions are the province of gastroenterologists, so your allergist doesn't necessarily know much about it.
I have been tested by the nhs for iGg reactions, its an immune reaction that occurs in the digestive system not the skin so its not technically called an allergy.
When you go into anaphalactic shock its an allergic reaction but i wonder if its maybe triggered/exacerbated by iGg reactions, theyre not mutually exclusive as my niece has both.
Unfortunately specific food testing for this can be extremely unreliable but if you test positive for any given food then your reacting to it, however it wont necessarily pick up everything your reacting to.
I had good results by doing an exclusion diet, literally just meat, fish, non nightshade fruit and vegetables. No eggs, dairy, grains, pulses, nuts, theres alot of information out there about it under AIP diet. Its made a massive difference to me and its not that difficult when you get used to it. I also eat alot of fermented food and drink which has made my gut alot happier.
Your symptoms are weird, im not surprised drs are scratching their heads but i hope you find your way ☺

June 30, 2018
A MyFoodAllergyTeam Member

I feel for you George,it is really frustrating .How can’t they find anything you have intolerance for.
Hope you find an answer soon 🤗🤗🙏🙏

June 28, 2018

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