I am allergic to or sensitive to most common foods: Dairy, grains, gluten, soy, Sesame, legume, nuts, tree nuts, poultry, pork, fish, shellfish, eggs, gourds (melons, cucumbers, pumpkin), green veggies, nightshades, most fruits (stone fruits, apples, citrus). I have contacted formula manufacturers but no one has anything suitable for me. I now have SMA syndrome because I've lost so much weight. Does anyone have any suggestions on how to get more calories in? I also have TMJ issues so I have to… read more
This is very much like me , Iv struggled on and suffered but now I have to seriously end my relationship with a lot of foods. Fortunately I have a good weight atm but I can see this is going to become difficult, but I cannot carry on with these major flare ups that are getting very so much worse. So many things I blame in the food list that it’s becoming a huge list of no no s .
My worst time is first thing in a morning which will last all most all day. By the time it’s subsided I’m starving but the choices the fear of it is becoming tiresome. Iv had enough of Angioedema, fibromyalgia , TMJ, diabetes and allergy oral mouth syndrome I’m loosing it . No idea how to help myself anymore since a down ward slop from 2018 .
I’m so sorry to hear this. I have a very limited diet due to all nuts, all vegetables and fruit, plus sulfites. On elimination diet for bladder irritation issues just cut out the last of things I enjoyed. I thought mine was bad. I looked into supplemental drinks as well. Nothing safe. At least your with John Hopkins, a great hospital. Are the offering intravenous feeding to at least get some nutrients into you? How can they not figure something out? You must be at the end of your rope. ☹️
I've been corn free (grain free) for over 5 years. This has not resolved my issues. Thanks though. I read labels very carefully due to my allergies and sensitivities.
I used to not be able to tolerate being around the food, but I've improved and can stand to smell them now without getting violently ill.
I'm working with Johns Hopkins and they're stumped too.
Thanks for your response.
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