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Real members of MyFoodAllergyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFoodAllergyTeam Member asked a question 💭
Guthrie, OK

Yesterday an hour after applying my lotion all over, I got a headache, then my heart began racing and I went to lay down worrying I may pass out! I go through my list of things I ate, what did I do or use and the lotion was the only thing I could think of. I immediately showed scrubbing the lotion off and by the time I got out , put my oil on instead I began feeling better. An hour later felt normal again.

March 26
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MyFoodAllergyTeam

What lotion is safe for someone with alpha-gal syndrome?

That sounds like a scary reaction! Alpha-gal can be present in certain medications, cosmetics, and supplements, so your lotion could definitely be the culprit.

To find alpha-gal friendly lotions, you'll need to carefully read ingredient labels and avoid products Show Full Answer

What lotion is safe for someone with alpha-gal syndrome?

That sounds like a scary reaction! Alpha-gal can be present in certain medications, cosmetics, and supplements, so your lotion could definitely be the culprit.

To find alpha-gal friendly lotions, you'll need to carefully read ingredient labels and avoid products containing:

* Gelatin or collagen (often derived from mammals)
* Glycerin (can be animal-derived, though plant-based versions exist)
* Stearic acid (can come from animal fat)
* Lanolin (from sheep's wool)
* Any ingredients derived from beef, pork, or other mammalian sources

Look for lotions that are:

* Labeled as vegan (these avoid all animal-derived ingredients)
* Made with plant-based oils and butters
* Free from mammalian-derived ingredients

Since ingredient sourcing can be tricky, consider reaching out to manufacturers directly to confirm their products are free from mammalian-derived ingredients. Your allergist can also provide guidance on safe products and may have recommendations from other patients.

Given the severity of your reaction (racing heart, feeling faint), make sure you have an epinephrine auto-injector prescribed and keep it with you at all times. If you experience similar symptoms again, seek medical attention immediately.

March 26
A MyFoodAllergyTeam Member

Thanks, Vadercat! I have since having this allergy, to look up all ingredients for everything! Found a great vegan site that gave a list of safe , not safe, chemicals, foods, personal care products, makeup, etc.
I have pets who all only eat chicken based foods but I wear gloves now to avoid any chemicals produced during processing.

April 2
A MyFoodAllergyTeam Member

Well there are things added to lotions like red Sea seaweed that because it's not a major component they dont have to list it on the label. It's related to alpha gal. The CDC page can list out little known additives not friendly but my allergist told me sometimes what Doesn't bother you today, could tomorrow. Somethings you just don't know so its like Russian roulette unless the company comes clean about everything and non food items aren't as stringently monitored. Nature of the beast I guess.
You can also call the EPA to see if they have a list of ingredients. That's how I found out I wS allergic to flea bomb foggers.Almost killed me but I got the product off the market with epas help. IT was made from a derivative of the ragweed family nut not marked. Ragweed is a common allergy! Why would anyone make a product out of it??

March 28
A MyFoodAllergyTeam Member

Thank you for the needed information!

March 27

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